Another PatientEating with EDSThere has long been a connection between Ehlers Danlos Syndrome and digestion issues. But without further research there were many years…May 16, 2023May 16, 2023
Another PatientWrongfully Imprisoned: Reflections on the Epiphany of Amanda KnoxAmanda Knox recently wrote a Twitter thread about her experience coming to terms with her wrongful imprisonment. In 2007, Amanda Knox, an…Apr 17, 2023Apr 17, 2023
Another PatientWhat is Disability Justice?Disability Justice has been defined as “the cross-disability (sensory, intellectual, mental health/psychiatric, neurodiversity…Mar 30, 2023Mar 30, 2023
Another PatientComplex SubluxationsThe subluxations (partial dislocations) caused by Ehlers Danlos Syndrome can leave impacted joints vulnerable to a repeated subluxation as…Feb 24, 2023Feb 24, 2023
Another PatientNervous System FloodingDysautonomia affects everyone differently and can even affect the same person differently from day to day or due to different triggers…Feb 8, 2023Feb 8, 2023
Another PatientFamily, Crip Doulas, and Coming Out“[T]he work of supporting people rebirthing themselves as disabled or more disabled has a name. We are doulas. Crip…Jan 18, 2023Jan 18, 2023
Another PatientBook Report: Demystifying DisabilityDemystifying Disability by Emily Ladau is a helpful primer on disability, accessibility, history, and ableism. This book is packed with…Jan 5, 2023Jan 5, 2023
Another PatientStories From a Queer, Former Bartender- In the Wake of the Shooting at Club QI have felt deep sadness over the Club Q shooting. I have vacillated between feeling numb and feeling angry. When I feel angry enough I…Jan 4, 2023Jan 4, 2023
Another PatientWhat It’s Like To Work With A CaregiverSupport systems are essential for chronically ill and disabled people. Sometimes this support can come from family and friends, other times…Jan 4, 2023Jan 4, 2023
Another PatientHoliday Gift Guide from Learning to be FlexibleIt’s that time of year, where holidays abound and we race to the new year. If you’re thinking of picking up gifts for the disabled and…Jan 4, 2023Jan 4, 2023
